Please find below information for a special event close the heart of our very own David Rhys-Jones. It is a very worthy cause and if you would like to be involved or help the organisation in some way, please contact Cheri Rhys-Jones, her details can be found below.
Funds raised will benefit Prader-Willi Syndrome Association of Victoria
Locate us at Registration table nearest 1000 Step Kokoda walk which is located at Dandenong Ranges National Park. There are 1000 stony and deep steps that lead to the One Tree Hill. A café , playground and toilet are close by. Public Transport is also available to the location. For more information go to www.dandenongrangesattractions.com.au/attractions/1000-steps.
How YOU can HELP
– JOIN US and register your participation on www.pws.asn.au
– SUPPORT US by sponsoring one of our participating families
– MAKE a donation
Contact Cheri or Tina on
info@pws.asn.au for queries.
What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a rare genetic condition affecting Chromosome 15. People with PWS have an obsession with food and eating, along with learning delays, poor muscle tone and behavioural issues.
There is NO CURE.
Families must put in place strict management strategies with diet and exercise to assist the PWS child otherwise the child will become morbidly obese and die from morbid obesity related issues.
Funds raised will contribute towards much needed Respite support for families.
This event sponsored by DASSI.
